Finding ways to reduce preterm pregnancies in vulnerable populations:
A Research Methods Case Study

Collaborators
Researchers from our client's side, and Stacy Benjamin, Alexis Schiff, Karishma Dotia, Rebecca Lenahan, Kelly Costello and Dana Fell from Panorama Innovation.
Role
Researcher for Panorama Innovation, Chicago
To comply with our non-disclosure agreement, confidential information has been intentionally omitted or obscured in this case study. The views expressed here are my own, and are not necessarily held by our client or by Panorama Innovation LLC.
The Problem
More than 375,000 babies are born preterm every year in the United States, of which 5250 babies pass away due to causes related to premature births or low birth weight.

Most of these pre term pregnancies occur in African American or Latin American women from low income groups. Our client, a health insurance company, was planning a pilot in this space to reduce preterm deliveries among vulnerable populations, & had asked us to conduct a research study to gauge the effectiveness of the proposed intervention.

Most infant deaths
in the US occur because of complications due to premature birth
— March of Dimes
9.8% babies
in the US are born prematurely
— Center for Disease Control, USA
According to March of Dimes, a non-profit organization that works to improve the lives of mothers and babies, premature birth (birth before 37 weeks of pregnancy) and its complications are the #1 cause of death of babies in the United States. Babies who survive premature birth often have long-term health problems, including cerebral palsy, intellectual disabilities, chronic lung disease, blindness and hearing loss.

The CDC found in a 2018 study that nearly 1 in 10 babies is born prematurely in the US, and that racial and ethnic differences in preterm birth rates remain. For example, in 2018, the rate of preterm birth among African-American women (14%) was about 50 percent higher than the rate of preterm birth among white women (9%).

Project Role

I worked with the rest of the team to plan and conduct the research, and analyze the results to generate insights and opportunity areas. I also contributed to secondary research, recruiting and interviewing subject-matter experts, and presenting our findings to our clients.

My core responsibilities were to design the remote research experience, implement it, support the participants during the study, and provide our team with the data received during it.‍

This study occured in February 2020, right before the Covid-19 pandemic hit the world, and learnings from this project helped during numerous design research projects that I have been part of after this one.

Quick Note About this Case Study

I am unable to share findings of this study due to non-disclosure agreements I am required to comply with, and would instead prefer to take this opportunity to tell you about the remote research methods we had to use for participants who lived in Virginia and Texas. For the remote research piece, we experimented with various tools which were available on the internet to conduct research, while ensuring participant comfort with technology.

Research Planning

After conducting secondary research and interviewing subject matter experts and client-side stakeholders, we contracted a recruiting agency to search for research participants- women from a range of socio-economic backgrounds who were either predisposed towards pre-term labour, or had medical history of a premature delivery. Our research participant sample set was spread across three different states in the United States- Illinois, Texas, and Virginia, to accommodate states with historically higher rates of pre-term labour and related complications.

Our goal was to understand the daily lives of the participants- their schedules, habits, family life, medical history, healthcare related experiences, things which made them feel empowered, and barriers or challenges towards taking care of themselves. To understand the frequency of their habits and actions, we decided to use an activity based card sort to accompany a semi-structured in-person interview for the research participants in Illinois.

It wasn't possible for us to travel to the participants' locations in Texas and Virginia due to budget and timeline constraints, but we still needed a comprehensive understanding of their health actions, habits and lives.

The question in front of us was- how do we get in-depth, high quality information from people we couldn't meet?

We decided to try remote interviews with an online whiteboard based card sort, with a digital diary study, and a form based survey to cover any more questions we may have towards the end of the study.

Designing the card sort

The first thing we tried was using online whiteboards like Miro and Mural for the card sort. Here's an example we built on Miro (left) and tested out on the android app (right).

Card-sort example on Miro

Testing on mobile devices

What we realised was that using the mobile app for this exercise was vexing due to the small screen size of mobile phones. Additionally, most participants did not have laptops or personal computers, and would have needed to install the respective whiteboard app on their phones to participate in the study- something our recruiter told us the participants were not comfortable doing. We also tried to conduct the phone interviews amongst ourselves while parallely using the whiteboard app, and observed technical glitches like dropped calls and frozen screens especially on budget devices.

The next option was to explore different form builders and convert the card sort activity into a drop-down based question. This would be the simplest way to implement the card sort, and we would ask them about their form responses in an interview towards the end of the study.

For this exercise, we explored Google Forms, Typeform, and Zoho Forms.

After testing different types of questions and comparing the user interface of the forms on mobile devices, we found that Typeform suited our needs and provided a seamless experience for the research participants. Here's an example of the card sort that we created for the final exercise.

Designing the diary study

For creating the diary study, we took a look at note-taking tools like Notes, Evernote, and Google Keep, of which we found Evernote's templates to be most suited to our needs. Some of our participants were also already using the Evernote app for their personal use, which we saw as a positive.

However, Evernote did not allow us to share notebooks with other users. Also since we learnt from the recruiter that some participants were not comfortable installing new apps on their devices, we started exploring alternatives that were already available on our participants' devices, like texting.

The research app Indeemo was also seen as an option when we were testing Evernote, but since it too required that users install a new app, we did not explore it further.

We decided to create a diary experience using text messaging, where we gave the research participants daily prompts, and asked them to respond with photos and descriptions. On the research team's side, we masked my phone number using a Google Voice number, and received the participants' text messages and images directly on our computers. This streamlined the process of downloading the images and organizing the responses. It also made it much faster to share the responses with the rest of the research team.

Final Research Stack and Handover

The remote research study was planned for a total of 3 days, during which we asked them to

  • Participate in an initial interview over phone
  • Respond to prompts about the habits and activities over messages via text and photos
  • Answer survey questions via Typeform
  • Participate in a second phone interview towards the end of the three-day study


The questions were updated daily on a Google Sites webpage that we used as a bulletin board for participants to come to every day and get links and prompts for the day's exercises and survey.

The final set of tools we used for this remote research project were:

  • Phone calls for the interviews
  • Text messaging for the diary study
  • Google voice to handle the incoming text responses
  • Typeform for the card sort and survey questions

The research exercise was a success, and we received a lot of high quality data from both online and offline parts of the study. Our clients appreciated the amount of effort and attention to detail we had put in, especially for the online remote studies.

We presented insights from the study and opportunity areas for future interventions in this space to prevent pre-term deliveries, and handed over the project data to the client.

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